EURORDIS Black pearl awardees 2021

EURORDIS would like to congratulate all our 2021 Awardees.
Their commitment, dedication and achievements for the Rare Disease Community are outstanding.
Join us in celebrating them!

The EURORDIS Member Award 2021 goes to AKU Society to recognize their 17 years of advocacy and research in the rare disease field, which led to groundbreaking achievements in the rare disease community. Among the organisation's many projects deserving recognition, we would like to highlight particularly the outstanding results of DevelopAKUre and Patient-Centric leadership.

The award also recognises Nick Sireau's exceptional work and contributions as an individual. Thanks to his and the AKU Society's action, a life-changing treatment is now available to patients in Europe.

The EURORDIS Scientific Award recognises Prof. Alain Hovnanian's scientific excellence and comprehensive reach, the outstanding dedication he has demonstrated in the rare disease community and the positive impact he has made on rare disease research and patient community.

His research and work in rare skin diseases has proven ground breaking, particularly with Epidermolysis Bullosa and Pachyonychia Congenita, both in France and at international level.

https://www.youtube.com/watch?v=4Jvjg5HYxnE

Full text on the link
https://blackpearl.eurordis.org/awardees/

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